January 9, 2020

‘To go from, “I’m sorry, you’ll never be cured,” to, “You are cured.” – those were the best words I’ve ever heard in my life.’ – Donna’s story

‘To go from, “I’m sorry, you’ll never be cured,” to, “You are cured.” – those were the best words I’ve ever heard in my life.’ – Donna’s story


When Donna was diagnosed
with non-Hodgkin lymphoma in 2009, she was worried about the impact on her
young family. A decade later, Donna is back running around after her boys after
having a lifesaving stem cell transplant in 2016. This is her story.

When I heard the word ‘cancer’, the first thing I thought
was, ’What about my boys? What are they going to do without me?’

They were six and two years old at the time. I was 27. It was a big shock. The doctors told me I’d never be cured, but I could have treatment to reduce the non-Hodgkin lymphoma and live with it. Unfortunately, after each treatment, the cancer came back more aggressively.  They said I needed a stem cell transplant from a matching donor, otherwise I would die.

From the worst words
I’ve ever heard, to the best

I got on with things as best I could. I had my boys, I
needed to be strong for them. Every now and then I’d break down but I’d go in a
different room so they wouldn’t see it.

When they told me they’d found a donor, it was amazing. I
cried. Not only was I thinking that this could be the end of me being unwell,
but I was touched that a complete stranger would do this for me. They saved my
life. Nine years after being told I’d never be cured, I’m in full remission!

I was really nervous on the day of my transplant, I have to
admit. I knew it would make me feel more ill at first, but it was exciting as
well. For the first time, I felt like I had my whole life ahead of me, where I
wouldn’t have to worry, wondering if every pain meant the cancer had come back.
Obviously in the back of my mind, there is still that little inkling, ‘What
if…’ but I’m going to enjoy my life.

To go from, ’I’m sorry, you’ll never be cured,’ to, ’You are
cured.’ – those were the best words I’ve ever heard in my life.

The stem cell
transplant changed all our lives

Life is absolutely fantastic now. I’ve never felt this good.
I just feel like a completely different person. I couldn’t work for nine years
because the treatment had a bad effect on me. When I got to a point where I was
healthy enough to work again, the blooming thing came back. Now, I’m back at
work and I was promoted earlier this year!

The biggest thing for me though is my family. I didn’t
really think of myself when I was diagnosed, I thought of my family, how they
would cope with this. My boys were so young when I was first diagnosed. My
youngest didn’t remember a time when I was well and with my oldest, I went from
being an active mum doing everything with him, to being able to do hardly
anything. So, not only has the transplant changed my life, it’s changed my
boys’ lives, my husband’s, all my family’s really.

Thanks to the transplant, I’m still here. I’m going to be
here for my boys. I’ll get to see them grow up, go to college, get married,
have kids. For a long time, I didn’t think I would be here for any of that.

We went away to Somerset last year. We hadn’t had a holiday
in such a long time, and it was wonderful. I was able to run around the beach
with my boys and do ‘mum things’ again. I can just live my life and be me, be
Donna, be Mummy.

‘To go from, “I’m sorry, you’ll never be cured,” to, “You are cured.” – those were the best words I’ve ever heard in my life.’ – Donna’s story

To anyone going
through this

I’ve seen family members go through cancer. I always used to
think, ‘I don’t know if I could be that strong if it happened to me,’ but when
you get that diagnosis, you do get the strength from somewhere. I had such
fantastic, supportive family and friends. That helped a lot.

My advice to anyone going through this is: keep your chin
up, hope that things will be okay, and enjoy the life you’ve got – don’t let cancer
ruin your life. A transplant does make you feel rough. I felt like I was dying
at one point and it was hard being in isolation and away from my boys – but it
was worth it to spend the rest of my life with them.

Everyone should get
the chance that I’ve had

Someone in our family had the same cancer as me and he
didn’t even make it to the transplant, sadly. He’s not with us anymore. So,
even though I’ve had cancer three times, I know I’m one of the lucky ones.

Everyone should get the chance that I’ve had – to find a
match, to have a transplant. Cancer is a horrible thing and together we can
hopefully stop many more people dying and missing out on seeing their families
grow up, or their families having to live life without them. It could happen to
anyone. I never thought I’d be woken up one morning and told I have cancer. You
think it won’t happen to you, but unfortunately none of us have a say.

I’ve started fundraising for Anthony Nolan and I’ll tell
anyone:  join the register, donate money.
It saves lives! Nine years ago, I didn’t think I would still be here but here I
am, and I’m cured. Knowing that I’ve got my whole life ahead of me is just
amazing. I’m so, so grateful to Anthony Nolan and that stranger who saved my
life. I hope one day I get to thank him.



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